Alzheimer’s is an insidious disease that slowly unravels the mind and the self. It shakes families to the core, and forces them to adapt in smart and meaningful ways.
While scientists work feverishly to stop Alzheimer’s, there is much to be done for families right now. With funding from MetLife Foundation and in partnership with Cure Alzheimer’s Fund, executive producer David Shenk recruited four world-class filmmakers to produce short films, true-life stories, about how individuals and families cope. Greg O’Brien and his family were the subject of a short film produced by legendary documentary producer Steve James. The film is titled, “A Place Called Pluto,” and can be viewed on-line at: livingwithalz.org.
Other Living With Alzheimer’s filmmakers include: Oscar-winning producer Roger Ross Williams; Oscar-winning director Megan Mylan; and Emmy-winning Naomi Boak.
(Resource guide is courtesy of David Shenk and Living With Alzheimer’s project.)

Wednesday, November 4
Event Title: Faith, Hope and Humor
Time: 4:00–5:30 PM
Location: Nazareth University
Rochester, NY
Format: Panel discussion
Panel Members:
- Greg O’Brien — Award-winning investigative journalist, author, and Alzheimer’s advocate
- Season Bonino, PT, DPT, GCS — Clinical Associate Professor, Department of Physical Therapy; Geriatric Certified Specialist
- Will Soles, OTR/L, MS, CSRS — Clinical Assistant Professor, Department of Occupational Therapy
- Katherine Spiotta — Occupational Therapy graduate student
- Mort Stein, AS, BS, MS, CAS, Ed.D. — Caregiver
- David W. Steitz, Ph.D. — Professor of Psychology and Director of the Gerontology Program
Organizing Group: Nazareth University / Gerontology Program
Thursday, November 5
Event Title: Walking Together: Dementia, Caregiving and Community
Time: 1:00–3:00 PM
Location:
1325 Elmwood Ave
Rochester, NY 14620
Audience: Approximately 50–100 family caregivers
Format and Program:
- Brief introduction
- Greg delivers his prepared speech
- Q&A with Beth Adams of WXXI, who has been reading Greg’s book and previously produced an award-winning series on loneliness and caregiving featuring St. John’s and Lifespan
After 3:00 PM:
- Book sales and signing
- Partner and vendor tables
- A 10–15-minute sing-along led by Michael from ENCORE Chorus
- A Quick Look At Alzheimer’s Disease: Five ‘Pocket’ Films to Increase Understanding of a 21st Century Epidemic
- NIH — What is Alzheimer’s Disease?
- The Forgetting, by David Shenk
- Alzheimer’s Association — What is Alzheimer’s?
- Understanding Alzheimer’s: A guide for families, friends, and health care providers
- Alzheimer’s Disease, National Center for Health Statistics
- Statistics About Alzheimer’s Disease, Alzheimer’s Association
- The Silver Book, Alliance for Aging Research
- Alzheimer’s Association Research Center
- Alzheimer’s Research Forum
- Updates from Cure Alzheimer’s Fund
- Key Research Findings in 2012, by Rudolph E. Tanzi, PhD
- Glen Campbell…I’ll Be Me, award-winning documentary directed by actor-filmmaker James Keach, produced by Trevor Albert
- Understanding Alzheimer’s: Five ‘Pocket’ Films, directed by David Shenk
- PBS’s The Forgetting, directed by Elizabeth Arledge
- Away from Her, directed by Sarah Polley
- Alzheimer’s Disease Medications Fact Sheet, National Institute on Aging
- Alzheimer’s Disease: Treatment Overview, WebMD
- Medications for Memory Loss, Alzheimer’s Association
- Alternative Treatments for Alzheimer’s
- Caregiving strategies
- Find an in-person support group in your area
- Online support groups
- Live contact: phone, chat, or skype with a licensed social worker
- Alzheimer’s Association
- Cure Alzheimer’s Fund
- Accelerate Cure/Treatments for Alzheimer’s Diseases
- Alzheimer’s Foundation of America (AFA)
Organizing Partners Mentioned: WXXI, Lifespan, St. John’s, and ENCORE Chorus
Resources
Learning About Alzheimer’s
Disease Overview
Statistics and Data
Clinical Trials
Latest News and Research
Films
Treatment and Prevention
Prevention
Treatment Options
Caregiving
Caregiving Resources
Fighting Alzheimer’s
Calls to Action
Advocacy Organizations
Caption: Greg O’Brien, collecting his thoughts before taking a jog.
Photo by Michael Strong
